{"id":1178,"date":"2019-11-26T20:17:48","date_gmt":"2019-11-26T20:17:48","guid":{"rendered":"https:\/\/biobanque.ca\/faq\/"},"modified":"2026-06-18T00:37:40","modified_gmt":"2026-06-18T00:37:40","slug":"faq","status":"publish","type":"page","link":"https:\/\/biobanque.ca\/en\/faq\/","title":{"rendered":"FAQ"},"content":{"rendered":"\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t

Frequently asked questions from participants<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tWhat is a biobank?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

A biobank is an infrastructure that collects, preserves and stores biological samples and associated data following standardized procedures for scientific and clinical use.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tWhat is a biological sample?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

A biological sample can be a cell sample, a solid or liquid organ fragment, or the product of a blood sample.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tWhat are \"associated data\"?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

The associated data are biomedical information from the research or medical record, and include elements such as age, sex, ethnic origin, diagnosis, treatments, clinical course, medication, laboratory results, imaging or pathology<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tWhat characterizes the AIRS network Biobank?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

The AIRS Biobank supports health research, with a primary focus on respiratory diseases. It brings together participating centers dedicated to banking human tissue according to the highest quality standards. Sample-associated data is shared on a secure central server. Networking biobanks facilitates the development of research programs, encourages collaboration among researchers, and increases access to rare samples.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tWho are the participants in the AIRS Biobank?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

Participants who have given their free and informed consent as part of their clinical follow-up or who are taking part in a research project in one of the participating centers.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tWhat does free and informed consent mean?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

In keeping with the principle of respect for individuals, consent is free<\/em> when it is given voluntarily, i.e. without being coerced. It is informed<\/em> when it is given with full knowledge of the facts. Participants must know and understand what they are agreeing to.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tDo I have the right to withdraw my participation in the Biobank?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

Participation in the AIRS Biobank network is voluntary. Participants are free to withdraw their participation at any time, without having to justify themselves, by making their decision known to the Biobank coordinator or to one of the Biobank staff members at a participating center.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tWhat are the benefits of my participation in the Biobank?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

Participants derive no personal benefit or financial compensation from their participation in the biobank. However, the results obtained could contribute to the advancement of knowledge about respiratory diseases.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tWhat types of biological samples can be banked?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

Depending on the nature of the clinical care the participant is receiving or the research project in which he or she is involved, this may include lung tissue, blood, nasal tissue, respiratory secretions or sputum, bronchoalveolar lavage, urine or stool.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tHow much tissue and blood will be collected if I participate in the Biobank?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

Biobanking samples does not usually require additional tissue to be removed during a procedure. We will keep in our biobank the Residual tissue of one or more samples that would normally be discarded. Samples are taken when the participant is receiving care or participating in a research project. If the participant agrees, a blood sample of up to 14 milliliters may be taken.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tHow is confidentiality ensured?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

We are committed to protecting the privacy and identity of participants at all times. The minimum precautions taken by the various centers participating in the Biobank to protect confidentiality are: coding, anonymization, restricted physical access and data under lock and key. Encoded and denominated data are stored on a secure server. Only a few authorized people have access to this server.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tWho has access to samples and data? <\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

Both academic and private industry researchers can access the samples and associated data. For a researcher to be eligible, his or her research project must have been approved by a scientific committee and a research ethics committee.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tCan researchers who have access to samples and data know who they come from? <\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

Researchers using samples and data stored in the Biobank cannot identify participants. Information resulting from research on biobank samples is used for scientific purposes only.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tHow long will my samples be kept?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

Depending on the version of the consent form that is signed, samples and data may be kept for 25 years, or for as long as their scientific interest warrants, subject to approval by the ethics committee.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t<\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\tCan I receive the results associated with my samples?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t

No. No information on the specific use of the samples and data entrusted to the Biobank is sent to the participant. We invite you to consult the Media – Publications section of this site for more details on the results of research carried out using Biobank samples. In the event that a scientifically validated result significant to your health is discovered and preventive measures or treatment is available, the participant will be informed by his or her doctor.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Frequently asked questions from participants What is a biobank? A biobank is an infrastructure that collects, preserves and stores biological samples and associated data following…<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_customify_content_layout":"","_customify_sidebar":"","_customify_page_header_display":"","_customify_disable_header":"","_customify_disable_header_top":"","_customify_disable_header_main":"","_customify_disable_header_bottom":"","_customify_disable_page_title":"","_customify_disable_content_vertical_padding":"","_customify_disable_footer_top":"","_customify_disable_footer_main":"","_customify_disable_footer_bottom":"","_customify_breadcrumb_display":"","_customify_header_transparent_display":"","footnotes":""},"class_list":["post-1178","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/biobanque.ca\/en\/wp-json\/wp\/v2\/pages\/1178","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/biobanque.ca\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/biobanque.ca\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/biobanque.ca\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/biobanque.ca\/en\/wp-json\/wp\/v2\/comments?post=1178"}],"version-history":[{"count":3,"href":"https:\/\/biobanque.ca\/en\/wp-json\/wp\/v2\/pages\/1178\/revisions"}],"predecessor-version":[{"id":1246,"href":"https:\/\/biobanque.ca\/en\/wp-json\/wp\/v2\/pages\/1178\/revisions\/1246"}],"wp:attachment":[{"href":"https:\/\/biobanque.ca\/en\/wp-json\/wp\/v2\/media?parent=1178"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}